Sunday, June 21st

I'm always thankful for running into people we haven't seen in a while. They ask details about Lexi and I wonder how they know so much- to which they reply- I've been reading the blog! Life has been...overwhelming for our family to say the least but we will try to do better at keeping the blog updated at least every other week as Lexi still needs a great deal of prayer and healing!

For Lexi's update:
We have been making some progress with physical therapy and occupational therapy. Lexi is now holding her head up but still tilts it to the right due to her torticollis. It has been difficult to find time to work with her multiple times a day with trying to move! However, her speech therapy has been moving very slowly. Lexi is now taking some bites of baby food by mouth, which we are very thankful for! She it taking about 15 bites. We are still having no luck with bottle feeding. We have been referred to the Cleveland Clinic feeding hospital, but the first opening is not until October. Also, if they decide to take her into the program, they will want to see her in Cleveland once a week! We are hoping to make drastic improvements in her feeding over the next few months so we can avoid this!

In regards to equipment, we were blessed with an anonymous donor from our church that will now allow us to cover the portion of Lexi's physical therapy equipment that our insurance will not cover. The company for the equipment came out 2 weeks ago and is working on getting everything ordered! This is going to be a huge help for Lexi!

Finally, we are heading to Cleveland Clinic next Sunday evening as we have a 9am apt. on Monday morning. Lexi will be seeing Cardiology and Neurology next Monday- probably the 2 most important doctors for her care! The neurologist has also scheduled an EMG to determine Lexi's progress. For the EMG, they place tiny needles in her face, throat and tongue and send electrical currents through them to determine the extent of her nerve damage. In January, they did not use sedation on her as this is dangerous to do with infants. However, they have decided to do part of the test under sedation this time since Lexi is now rolling all over the place! As you can imagine, you must lay completely still during the test! We go in on Wednesday for pre-surgery exams. The EMG will last 2-3 hours and we will have the results on Tuesday of next week.

Prayer Requests:
Please pray for Lexi's therapies. Pray the the therapists have wisdom on how to help Lexi improve. Pray that we see quick improvements with feeding.

Pray for our family as we are struggling to find time for everything. Completely re-modeling this foreclosure has been very tasking. The basement also flooded this past weekend and we are struggling to find the cause of the flooding problem! Pray for strength and time management as we work to move this week (we hope)!!

Finally, please be in pray for Lexi's EMG next week. An EMG was completed in January and this will be the exact same test this time, with the exception of anesthesia. This is HUGE for us to give us answers as to Lexi's future. If there are improvements, this means Lexi will most likely improve. If there are no improvements in the past 6 months, Lexi will most likely not get better! Please pray for a smooth test and positive results!

We will blog more when we get the results next Tuesday. Her EMG is from 12:30pm-3:00pm on Monday, June 29th. Please be in prayer for little pain for little Lexi during this time!