Sunday, November 30

Alexis got to have her Daddy all to herself this weekend. He came up Friday and stayed through Sunday so I could go home to see the twins Saturday through Sunday. It was nice to be home for the first time in 2 1/2 weeks, but those 24 hours went by very quickly.

As I'm writing this Alexis is snoozing her in princess decorated crib. She sleeps a lot lately due to some of her medication. While it's nice that she's not irritable and un-sootheable, it's frustrating that she's not awake and alert much at all during the day, making it difficult to work on her occupational and physical therapy, as well as her normal baby movements of kicking and moving around. The neurologists were in today and plan to now be in to examine her every day as she still has an undiagnosed neurological issue.

Since tomorrow is the first of the month, we get an entirely new team of cardiologists and neurologists to treat Alexis. They will meet with and be thoroughly updated by the previous roatation of doctors. We are optimistic that having a new set of people examine her may shed some new insight and opinions into her condition and care.

Specific Prayer Requests:

Pray for the new team of doctors as they try to diagnose Alexis' cause of complications and find a treatment for them.

Pray that this week we are able to see some sort of improvement in Alexis' condition. The most important reflex for her to regain is her gag reflex. Pray for this to come back soon so we can begin working on feeding therapy.