Friday, January 9

This week Lexi met with the neonatalists here in Findlay. She is gaining weight at an acceptable rate (she is 10 weeks and 8 lbs 14 oz) so we have been able to move her feeds to every 4 hours and feed her over the course of an hour. Gaining an extra hour between feeds has been a big help. This week, the home nurse and Physical Therapist came to do their initial evaluations and tomorrow and Sunday we will be seeing OT and Speech (who will help her with feeding). It looks as though we will have 1-2 doctors apts a week and then see a nurse, PT, OT and speech in our home 2 times a week as well as a developmental specialists. We are realizing that it is going to become very difficult to arrange all of these schedules and try to manage the twins during all of Lexi's therapies.
Perhaps the most frustrating thing this week is that Lexi's feeding tube pops open constantly. The opening to her tube apparently is faulty. It comes open and leaks formula everywhere! Unfortunately, until her incision heals, they cannot replace the tube. This is typically 2-3 months! For now, we will have to watch it closely and keep tape over it to prevent it from opening. I will be speaking with the Cleveland Clinic neurologist on Monday so we are praying that he has some additional answers after examining her records.

Prayer Requests:

Pray for scheduling. As we mentioned, Lexi will begin seeing numerous doctors and therapist in the upcoming weeks. Pray that we are able to coordinate all of our schedules to accommodate the appointments. Pray for our conversation with the Cleveland Clinic Neurologists that they will have answers for Lexi's problems.