Sunday, August 9,2009- Busy week!

We have had a very busy week this past week for Alexis! Let me explain:
Alexis' has been having some issues with her eyes turning inward. We noticed it about 3 weeks ago but thought it may be just a phase. This past week her therapists and my sister, Holly, commented on it. We took her to see the pediatrician at Blanchard Valley Hospital and he said it is definitely of concern. So, off we went for our 2nd trip to Cleveland this past week. On Monday, we went to see GI and ENT. Thursday, we saw Opthomology. The opthomologist are also concerned as to what is causing her eyes to turn in so quickly. In addition, it quickly affects infant's vision as it is still developing. The good news is that it is not her optic nerve (cranial nerve 3), which means there is no immediate danger to Lexi's vision. The opthomologist are pretty sure it is due to her cranial nerve damage- this would be cranial nerve 6. So now, we have been worked into see her neurologist on Monday (tomorrow). The neurologist plan to do a full neurological exam Monday, most likely followed by an MRI sometime this week. If things do not progress in the next 3-4 weeks, they will be scheduling her for eye surgery. Obviously, Lexi does not need any more "strikes" against her. Please pray that the neurological exam goes well on Monday and this is only a very temporary issue from her nerve damage.

Lexi's therapies are going well but her progress remains slow. Her vision troubles are definitely of concern to the therapist as vision drives a lot of physical milestones. We are still working with Lexi on grasping toys with her hands, eating and now are starting to work on her sitting up. The best news is that Lexi is now giving some pretty big smiles on a regular basis (especially for her mommy!) The GI doctor on Monday is still concerned about her size, so they have increased her calories via formula. Lexi gaining weight more quickly will also hopefully help with her physical milestones.

Please pray for traveling as we make our 3rd trip to Cleveland in a week. Lexi usually only lasts about 1 hour in her car seat. Pray that she remains peaceful and patient.
Pray the Lexi's exam goes well tomorrow and that, regardless of the outcome, the doctors can find out exactly what is causing this sudden vision problem.

We will try to post some information later this week after we meet with neurology.