Today has been a very eventful day for Lexi! The twins came for a visit. We, Jon and I, were both so glad to see them! They have grown so much in the past 10 days! A BIG PRAISE- Lexi has been moved out of ICU! Her weight upon leaving ICU is 6 lbs. and 7 oz. She is now on the 5th floor- the cardiac floor. Things are VERY different on this floor. There is a central nurses station and Lexi has her own room. This has been a bit "disturbing" for us though because she has gone from having her own nurse to getting attention only as absolutely needed. While this is a good sign, this means I (Cherie) will be doing the large majority of the care for Lexi. This includes sleeping in the room and getting up every 2 hours when her feeding tube needs refilled. We will get to come home when Lexi is able to drink all bottles on her own. She does not understand the swallowing or the sucking motion. The nurses have told me that this TYPICALLY takes from 1 1/2 weeks to 2 months for babies to re-learn! We are PRAYING that this will be on the very short end for Lexi. We cannot physically, emotionally or financially do this for a lengthy period of time. The twins need their mommy back and I would REALLY like to be home for the holidays.
Prayer Requests:
First, a HUGE praise that Lexi has been taken out of the ICU- what a step in the RIGHT direction!
We are asking for many prayers in Lexi's feeding. We didn't understand that this would be such a process for her to relearn something that babies do in the womb. The doctors do not know why most babies with heart surgery lose all feeding skills, but it is somewhat common. Pray that Lexi is a VERY quick learner and is able to adjust quickly so we can come home!
Pray for Jon as he heads back to work tomorrow morning and is daddy and mommy to twins. Pray for Cherie as she stays in Columbus with Lexi and begins some long days and short nights.
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3 comments:
Cherie, if you need an ear call me. My entire stay with Taylor, I never let taylor's room. Only david who slept at Ronald McDonald house. It's nice to have the privacy but I am sure is unnerving. Praying Lexi learns to suck soon too!!!!! She's got smart parents and lots of prayer warriors, so that has got to help!!!
On another note...Don't hesitate to use the nurses so you can eat shower and just get up and walk around. They will watch her!!! That's what we did with Taylor. We actually made friends with the lady in the room next to us[ there were accordian doors on the nuero floor so they could watch two at once] and we would go sit in the cafeteria or even the lobby. Just be out of the room etc....Remember to take some time for you each day...it's what our dr told us!!!!
This posting is from Bills mom: MANY people at her church Monclova Baptist in Monclova, OH are praying for all of you and are keeping up on her situation by watching the Blog. Sherry is sending a gas card your way to help Jon get there and back! Lots of people are thinking of you!
Amy for Sherry Brown
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