Happy Thanksgiving. Even amidst all of these difficult days, we have many things to be thankful for. Today, my parents brought our beautiful, healthy twins down for a visit and we went to dinner at a hotel. When we got off the elevator, my entire family was there! (Andy and Mindy were "there" via phone since they were visiting her family in Texas). They insisted that we all spend Thanksgiving together. It was very touching and such an blessing for Jon and I for our entire family to be together for even a short time. We are also thankful for all of your prayers and support. I know many, many people that tell Jon and I and our family that they read the blog daily. This means a great deal to us and we continue to covet your prayers. We also are thankful for those of you who have given of yourselves, either with time or finances, to help encourage us and lift us up. It is greatly needed and greatly appreciated.
For Lexi's update, we had a big answer to prayer last evening for her MRI. The doctors said they were going to try her MRI without sedation, which is difficult for an infant to lay still for almost an hour. If Lexi didn't lay still, they would have to do the MRI next week and would have to give her another breathing tube. We made some quick calls and asked for prayer. Lexi not only made her 1st MRI at 4pm without any movement, she made it through the MRA that evening as well. Praise God!
The doctors were in again today and are beginning to eliminate some possible sources of the problem. The MRI did show the Lexi has had a mini stroke. It is a VERY small spot and the doctors do not believe this will lead to any long-term damage. However, the area of stroke does not explain her lack of facial reflexes. While there is no test to actually see the cranial nerves, the MRI does not show any damage to the part off the brain that controls those nerves. The neurologist HOPE that for some reason, Lexi's cranial nerves (4 out of the 12 nerves) are slow to wake up from all of her sedation while she was in ICU. If this is the case, this means we will just have to "wait and see" and PRAY that the nerves "wake up" and regains she full function of her reflexes. If this is not the case and there is some permanent damage, we will be facing some unknown challenges with Lexi and her recovery. The doctors have also started a different seizure medication for Lexi. This type is more of a sedative and Lexi has been MUCH less irritable. She is sleeping a lot during the initial doses but will become more alert again as her body adjusts.
Prayer Requests:
Pray that this mini stroke is the ONLY episode Lexi will have during her recovery process.
Pray for wisdom for the neurologists and that this is only a temporary problem. PLEASE pray that Lexi begins to DAILY show some improvement in her facial reflexes. This would be a HUGE encouragement to Jon and I! This will also give us a much better indication as to what the "road ahead" entails for Lexi's recovery.
Pray for the twins. This is a difficult time of adjustment for them- seeing mommy a tiny bit at a time and then having to leave again. They are beginning to have some minor personality changes and we would like to get their lives back to normal as soon as possible!
Thank you again for your continued support. We need a DIVINE intervention for Lexi but know we serve an amazing God who answers prayer!
Thursday, November 27, 2008
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2 comments:
AMEN!!! Family can be such a MORAL booster. Praying for inprovements and that this seizures med will keep her calm. Mine make me dopey for a couple hours after I take them each day. Been that way for years...but I am sure it's a slight blessing to be able to relax a bit.
I am glad you had a Blessed Thanksgiving!!!! God is watching over her and there is a reason and purpose, which you may never understand. That took me a long time for myself personally to get over. I just know that GOD watches over me and through him I am strong and I know you are STRONG even in your times on complete exhaustion, because GOD is with you, your family and especially LEXI!!!
We really enjoyed every part of yesterday! The twins are playing happily here with Ryan and are chasing Casper endlessly! Looking forward to seeing you again tonight and tomorrow!
We love you, Lexi - we enjoyed holding you last night and I hope you are up for more holding tonight!
Aunt Amy and Uncle Bill
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