Friday, December 26

Merry Christmas! We are extremely excited to let you all know that we received the BEST Christmas gift ever! Alexis is HOME!!!! Early on Christmas Eve morning, the doctors said she was doing so well with her continuous feeds, they decided to become very aggressive with moving Lexi up to her normal feeding schedule. Every 3 hours, they increased the feedings. They told us if she did well, they would allow us to come home. After her 6pm feed on Christmas Eve (and a visit from Santa), Lexi was discharged!! We arrived home late that evening and were able to surprise our whole family with our little miracle!

Lexi is home on 3 hour feeds but takes these feeds over the course on an hour. This means I set my alarm at night for every 3 hours and then am up for an hour. As you can imagine, this is already becoming exhausting and with the twins,there's no time for naps during the day. We will begin working with our family doctor to move Lexi down to half hour feeds over the next week or so and continue to work on her bottle feeding. Unfortunately, just because Lexi is home does not mean the work is over- it's actually just beginning! She will have a home health nurse 2 times a week and hopefully will also have PT, OT and feeding therapy twice a week. We are then taking her to Cleveland Clinic on January 2nd for a "second opinion." We PRAY that this will all be able to be done as an outpatient. We will be making trips to Columbus typically every two weeks for cardio, GI, opthomology and neuro appointments.

We want to thank everyone who has been praying so hard for Lexi. We never could've imagined she would be home for Christmas. God is good and we want to be sure to thank Him for this answer to prayer! PLEASE continue to keep our family in your prayers. Lexi is still on a long road to recovery as her cranial nerves begin to repair themselves and we seek to find answers to her condition.

Prayer Requests:
Please pray for strength for Jon and I. I am the type that requires a lot of sleep to function well. This will definitely not be the case for the next several months. Even if Lexi has the capability to go longer periods of time without feeds, she is still only 8 lbs. at 2 months old so we must ensure she gets all of her daily calories. Pray for growth and strength for Lexi.

Pray for her neurology apt. on January 2nd with Dr. Friedman at Cleveland Clinic. Pray for wisdom as he tries to get a grasp on Lexi's condition. Cleveland Clinic is also not covered under our insurance. We are trying to work on getting at least part of these apts. covered, but for now, we will be paying out of pocket for these visits. Pray that we are able to budget effectively to cover last year's and this coming year's expenses.


We will try to update the blog a few times a week as Lexi continues her recovery. We are still in need of a great deal of prayer and appreciate everyone checking in to see what the prayer needs are!

Thank you again for your support. We will post some Christmas photos of Lexi in the next few days!