This morning, Lexi managed to pull her NJ feeding tube completely out. She apparently is getting very tired of it! Since she now has her gag reflex back (Praise God again!), they were able to put the feeding tube back in again as an NG tube. This means that instead of putting food into her intestines, as it has been for the past 3 weeks, she is now able to have food into her belly! This is a step in the right direction. However, this sudden burst of food is making Lexi very irritable and is giving her a lot of belly aches!
Tomorrow morning is Lexi's swallow test. This will be done between 8-8:30am. This is imperative for her to begin feeding by bottle! If she passes, the OT will hopefully be able to start some oral feeds tomorrow afternoon. Otherwise, we will have to wait a few more weeks.
We also received the results of Lexi's echo cardiogram. Lexi still has a very loud heart murmur and the doctors were able to see a mild narrowing where her incision is on her aorta. They also found an additional narrowing down by her aortic valve. Both narrowings are mild and the doctors said they hope the narrowings will remain mild and not require additional surgery. She will have monthly check-ups to keep a close eye on these narrowings.
Specific Prayer Requests:
We are asking EVERYONE who reads this blog to take some time between 8-8:30am tomorrow morning and pray for Lexi during her swallow test. She is VERY fussy all morning. The OT and I are planning to do everything in our power to help Lexi participate in the test but we know we need an even Higher Power to help with the rest! Please pray that Lexi remains calm (they put her in a bouncy seat for the test and she HATES bouncy seats). Please also pray that she is able to suck and swallow the liquid and that she does not aspirate.
An ongoing prayer request will now be for Lexi's two narrowings. Pray that these continue to grow with Lexi and that additional surgeries will not be needed.
Libby is very sick with a stomach bug. She has not been able to keep anything down today. Pray that she has a quick turn-around and that Jon does not get the same bug. He'd like to come see Lexi this weekend!
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3 comments:
AHHHH the little fighter comes out in LEXI GO LEXI!!! I am sure the change in food is NOT fun at all!!!
But each step is a step in the proper direction!! PRAYING!!! hard for the morning!!!! and praying as you know daily :) Stay STRONG!!!!
I will be praying tomorrow morning!
Cheri- I can't even count the number of times Olivia pulled out her NG tube. It's because God put a lot of fight in those babies he gave those special hearts too. Keep your chin up and know that even though it seems you have some days with more downs than ups..Lexi is a fighter and she has alot of people praying for her. Take care and stay tough! The Montgomery's
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