Lexi has shown some improvement in regards to her constant crying! She has spent some time today in a "quiet alert" state! This is very encouraging and we hope the change in formula will continue to help settle her. The neuro team will be doing some more tests this week to try and get a better idea about Lexi's situation. Unfortunately, there are no tests that can isolate cranial nerves. They will be doing another CT, MRI, EEG and a test that will check the nerves of the brain stem. Hopefully, we will be able to get some results from these tests later this week! I was also able to speak with the cardio surgeon that did Lexi's surgery. He has never "seen, heard of or read about" this complication from surgery. He spent quite a bit of time talking with us but isn't really sure what the problem is! Lexi did work on 2 "bottles" today. She took 2 mls (1/2 a teaspoon) by a bottle. While such a small amount, this is a HUGE encouragement to us! Finally, our "Care Conference" has been scheduled for Thursday at 3pm. Jon will be taking the day off work in order to be here for this important meeting!
Specific Prayer Requests:
Please pray for continued wisdom for the neuro team as they brainstorm ideas of what could be happening with Lexi. Pray that the test done this week might give us some answers!
Pray for Lexi's feedings. This is one of the main obstacles she has to overcome in order to get home. Pray that Lexi develops an interest in the bottle and becomes stronger at her sucking reflex.
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5 comments:
Good to hear she made some Baby Steps today! Hopefully a lot of good will come out of the meeting on Thurs. We will pray earnestly for that! Little Lexi - you are so precious to all of us and we know that God has a very special plan for your life. Someday you will be able to tell others about the miracle that is YOU! :)
WOOOHOOOO 2ml down tons more to go.....take and enjoy those baby steps!!! And I agree with AMY... God has a purpose :)
Thank the Lord1!!! I continue to keep the prayer chains abreast about Lexi's condition so there are still lots of prays going up in PA. Some progress is better than none! We have seen so many miracles and we know that God can do another in Lexi's situation. Know that we love you guys and are praying for you.
Elated to hear about the progress!! Still praying!!! Let us know if you need anything... SERIOUSLY!!
I am so glad to hear that Lexi is making some positive progress! You all are never far from our thoughts or prayers!!
-Jason and Sarah
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